A highlight reflection on how it was...
Oct 4th at 3:30 am we got the CALL... made it to the hospital and he was going in at 7 am for the new liver. He came out at 2:30 that day and on to PICU. There we met some of the best nurses. Brendan's nurse was Brandi and she was really nice. We all rested the rest of the day and visited him off an on even though he didn't really know we was there. He was on so many machines but doing well. The next day the looked through a sonogram to see how it was doing and saw that it didn't have any blood flow to the new liver. So we had 2 choices he could be listed for another and listed as 1a meaning needs one asap or living related. We opt. for the 2nd. I went through all the emergency work up while Bah and papa was with Brendan and Gabe checking on him. More family showing up. Brendan went into surgery again to remove the new liver and back to PICU. That was until I was done with the test and ready for him to receive a piece of mine. At about 5pm I went into surgery. Brendan received the next at about 11pm. He had a rocky night and gave all the nurses quiet a scare, he had a seizure. They watched him very close and was on top of it all. Brendan spent the next 2 weeks on the machines, mild rejection and then they slowly started to wing him down. We went to a step down for the PICU and then home, what a month it was. Brendan went back at the beginning of the year due to other complications, viruses, ebv virus, ulcers and breathing issues. About a little over a year later we had a big scare that he may reject while we lived in KC. But after 2 days of testing and a biopsy. Can I say a VERY stressful experience! Not knowing if your going to lose your child. If it was rejection the treatment and medications what they have to do, what they can cause and if he was going to be ok. Brendan is one of the most fortunate ones, that is he doesn't and wasn't taking the anti-rejection medications. He had a virus in his blood. The really goood news was that if they didn't know it, it was hard for them to tell he had a graft host (transplanted liver). Along with all the lab work we had then and still do. I can't even begin to say all we experienced, thought and went through; it was all such an unbelievable time. But I have to say it all is just amazing, he was such a trooper then and still is today. I can't imagine life without him. I don't know how we made it through it all and it feels like it was a dream or someone else's life now. This is how we learned to just take things one day at a time. That is the only way I think anyone can/could ever make it through that kind of situation. But here he is and is doing wonderful. A completely normal acting boy, you would never know looking at or talking to him. Everthing he has been through, what a joy he is....
No comments:
Post a Comment